Written collaboratively by mother and son, Extraordinary! A Book for Children with Rare Diseases opens up a child-friendly discussion about identity in light of the challenges and silver linings of living with a rare disease. Evren & Kara Ayik wrote this book to uplift children with rare diseases and provide the kind of book they would have wanted to have during their own journey.

Find the book at rarediseasebookforkids.com

 

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Extraordinary! A Book for Children with Rare Diseases

Written collaboratively by mother and son, Extraordinary! A Book for Children with Rare Diseases opens up a child-friendly discussion about identity in light of the challenges and silver linings of living with a rare disease.

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